Category Archives: Parkinson’s Blog: Tulips for Breakfast

Ballet dancers visiting ‘Dance with Parkinson’s’

Balletttänzer des Theaters Augsburg zu Gast bei „Tanz mit Parkinson“ – einem Kurs des Staatstheaters Augsburg für Menschen, die mit dieser Erkrankung leben. Unter der Leitung von Gabriella Gilardi und Serena Pettinari bringt das Angebot durch Bewegung, Musik und Tanz Lebendigkeit und Verbundenheit in den Alltag der Teilnehmenden.

Ein großartiges Projekt!

Ballet dancers from Theater Augsburg are visiting “Dance with Parkinson’s”—a class offered by the Staatstheater Augsburg for people living with the condition. Led by Gabriella Gilardi and Serena Pettinari, the program brings vitality and a sense of connection to the participants’ daily lives through movement, music, and dance.

A wonderful project!

Happy World Parkinson’s Day!

Happy World Parkinson’s Day friends!

This is the day for persons with Parkinson’s, their families, friends and healthcare professionals to work together to promote awareness and increase the profile of Parkinson’s Disease.

Resources to explore:

Davis Phinney Foundation: stories, tools, strategies, real-life insight

https://davisphinneyfoundation.org/resources/

Parkinson’s Europe: How to lead a full life with Parkinson’s

Bas Bloem: Parkinson’s Weekly videos presenting latest reasearch articles on PD.

https://oruen.com/category/podcasts/parkinson-weekly

Haiku for Parkinson’s: Helping negotiate the challenges of the disease and improve quality of life.

Poets living with Parkinson’s:

Tim Roberts: Interview https://thehaikufoundation.org/haiku-for-parkinsons-interview-tim-roberts/

Martin Pickard: Poem about Parkinson’s

Stella Pierides: My Dyskinesia

Stella Pierides: Parkinson’s Toolbox: The Case for Haiku

adult bibs

Delighted to appear in issue 3 of Flying Fish Haiku Journal! Many thanks to Editor Richa Sharma for including this poem:

end
of the line…
adult bib

It connects to earlier work on the same theme. In 2022, reflecting on the problems faced by persons living with PD, I wrote about the qualities of haiku that recommended it as a tool in the Parkinson’s toolbox.

Briefly, I saw haiku as a container or vessel into which one could pour “all kinds of experience—the beauty of sunsets and cherry blossoms, the exhilaration of climbing personal ‘mountains,’ but also the depth of loneliness, the pangs of pain, the embarrassment of acid reflux—and transform them, in a few words, into a manageable, livable experience”.

The three ‘adult bib’ haiku are attempting exactly that. Failing facial and throat muscles result in spilling drinks, dropping food and dribbling, becoming a daily cause of distress. The adult bib becomes an essential helpful piece of clothing, making life easy for the carers, but at the same time infantilizing the person wearing it. What does this mean? Has the person with Parkinson’s reached the end of the line?

end
of the line…
adult bib

The extent of humiliation is plain to see:

birthday present…
his adult bib embroidered
with ducks

However, the situation may be saved:

birthday meal
his Chef's Apron
sparkling white

“birthday present” and “birthday meal” both in CHO 20.2, “First-person reflections on the art of writing haibun”,

Rainer Maria Rilke’s Birthday


Today, the 4th of December, is Rainer Maria Rilke’s birthday. Honoring the poet, three biographies appeared in 2025, which I am about to read: Sandra Richter’s “Rilke or The Open Life”, Manfred Koch’s “Rilke – Poet of Anxiety” and Ruediger Shaper’s Rainer Maria Rilke: The Prophet of the Avant-Garde.


All three in the German Language. In the biogaphy by Manfred Koch, Rilke’s traumatic experiences are shown to be pivotal in forming his psychological make-up and artistic drive. Several reviews confirm that Koch presents Rilke’s anxieties not as much as an obstacle but as the very creative engine for his poetry.


Being interested in ways in which art and literature are utilized to cope with pain, and trauma, I will be reading eagerly…

The Past Present (Haibun in Blithe Spirit)

Every Wednesday morning, seven of us serving the life sentence of Parkinson’s, tear through Mering Heath, in the south of Germany. Brushing against coarse grass and heather, stabbing the ground with our walking sticks, thrusting ourselves forward, we fill our lungs with the heather-scented air.

During today’s cooling-down session – swinging upper body left and right, extended arms loosely following, slowly catching our breath – the leader of our group relates the history of the place. In the 1700s, a building housing the Court of Justice stood exactly here by the Galgenbach, the Gallows stream. It was here that executions ordered by the Court were carried out. Crowds gathered, watched and cheered with the tightening of each noose, with each trap door opening. They watched the 15 minute-dance of the hanged, and then walked home.

hangman’s elm
the ancient tree creaks
and groans
.
In Blithe Spirit 35. 2 p. 70

World Parkinson’s Month

April is World #parkinson ’s Month! A month to increase awareness about this complex neurological disease, and support those impacted by it.

While scientists race to find a cure, there is a lot that can be done to help with quality of life.

Take a look at Parkinson’s Europe, the section on Self-help and Living Well:

https://parkinsonseurope.org/…/self-help-and-living-well/

The Davis Phinney Foundation is a good resource to explore: https://davisphinneyfoundation.org/resources/

The podcast series Two Parkies in a Pod offers advice and tips on how to cope with chronic illness, and the specific challenges of Parkinson’s: https://www.2parkiesinapod.com/

The Haiku Foundation year-long (2024-2025) series ‘Haiku for Parkinson’s’ features #haiku as a tool that may help calm, reframe problem(s), and generally improve the quality of life for those living with disease and the psychosocial entanglements it involves:

See, e.g., ‘My Dyskinesia’: https://thehaikufoundation.org/haiku-for-parkinsons-my…/

Interview of ‘Tim Roberts living with PD’: https://thehaikufoundation.org/haiku-for-parkinsons…/

‘From Haiku for Parkinson’s to Haiku for Healing’: https://thehaikufoundation.org/haiku-for-parkinsons-from…/

‘Through the Lens of Positive Psychology’: https://thehaikufoundation.org/haiku-for-parkinsons…/

And a song by Birdie Belgium, tribute to her mother who lives with Parkinson’s Disease: https://www.google.com/search?q=birdie%20belgium%20song…

https://parkinsonseurope.org/2025/04/07/birdie-belgium-releases-new-song-for-parkinsons/

What do I find helpful in my own journey of the disease? My family and friends; the ‘Betreutes Laufen‘ walking for Parkinson’s group in Augsburg, the Ping Pong Parkinson (PPP) group in Augsburg and the dedicated PPP Course in Koenigsbrunn (see also the nationwide PPP Association https://www.pingpongparkinson.de/); being part of the international online community, writing and reading haiku; felting, gardening…

wildflowers
the lightness of hope
and renewal