Category Archives: Haiku for Parkinson’s

Happy World Parkinson’s Day!

Happy World Parkinson’s Day friends!

This is the day for persons with Parkinson’s, their families, friends and healthcare professionals to work together to promote awareness and increase the profile of Parkinson’s Disease.

Resources to explore:

Davis Phinney Foundation: stories, tools, strategies, real-life insight

https://davisphinneyfoundation.org/resources/

Parkinson’s Europe: How to lead a full life with Parkinson’s

Bas Bloem: Parkinson’s Weekly videos presenting latest reasearch articles on PD.

https://oruen.com/category/podcasts/parkinson-weekly

Haiku for Parkinson’s: Helping negotiate the challenges of the disease and improve quality of life.

Poets living with Parkinson’s:

Tim Roberts: Interview https://thehaikufoundation.org/haiku-for-parkinsons-interview-tim-roberts/

Martin Pickard: Poem about Parkinson’s

Stella Pierides: My Dyskinesia

Stella Pierides: Parkinson’s Toolbox: The Case for Haiku

adult bibs

Delighted to appear in issue 3 of Flying Fish Haiku Journal! Many thanks to Editor Richa Sharma for including this poem:

end
of the line…
adult bib

It connects to earlier work on the same theme. In 2022, reflecting on the problems faced by persons living with PD, I wrote about the qualities of haiku that recommended it as a tool in the Parkinson’s toolbox.

Briefly, I saw haiku as a container or vessel into which one could pour “all kinds of experience—the beauty of sunsets and cherry blossoms, the exhilaration of climbing personal ‘mountains,’ but also the depth of loneliness, the pangs of pain, the embarrassment of acid reflux—and transform them, in a few words, into a manageable, livable experience”.

The three ‘adult bib’ haiku are attempting exactly that. Failing facial and throat muscles result in spilling drinks, dropping food and dribbling, becoming a daily cause of distress. The adult bib becomes an essential helpful piece of clothing, making life easy for the carers, but at the same time infantilizing the person wearing it. What does this mean? Has the person with Parkinson’s reached the end of the line?

end
of the line…
adult bib

The extent of humiliation is plain to see:

birthday present…
his adult bib embroidered
with ducks

However, the situation may be saved:

birthday meal
his Chef's Apron
sparkling white

“birthday present” and “birthday meal” both in CHO 20.2, “First-person reflections on the art of writing haibun”,

The Past Present (Haibun in Blithe Spirit)

Every Wednesday morning, seven of us serving the life sentence of Parkinson’s, tear through Mering Heath, in the south of Germany. Brushing against coarse grass and heather, stabbing the ground with our walking sticks, thrusting ourselves forward, we fill our lungs with the heather-scented air.

During today’s cooling-down session – swinging upper body left and right, extended arms loosely following, slowly catching our breath – the leader of our group relates the history of the place. In the 1700s, a building housing the Court of Justice stood exactly here by the Galgenbach, the Gallows stream. It was here that executions ordered by the Court were carried out. Crowds gathered, watched and cheered with the tightening of each noose, with each trap door opening. They watched the 15 minute-dance of the hanged, and then walked home.

hangman’s elm
the ancient tree creaks
and groans
.
In Blithe Spirit 35. 2 p. 70

The Clock and Rooster

What would you do if you knew this was the last night of the world? In Ray Bradbury’s short story and the recent Chamber opera inspired by it, couples, who have all dreamt the same dream about the world’s end, struggle with this question. Displaying doubt, disbelief and denial, as well as acceptance of their forthcoming demise, they argue, fight, hug, open their most expensive bottle of wine. The mundane response when facing the extraordinary. After all, the end of the world doesn’t sound as alarming as the Apocalypse!

And yet and yet. What would you do? What would I do? It is time to explore what our answer might be. Even more so than in 1951 when the short story was published, even when certain diseases propel some of us to an accelerated end. Seconds away from disaster, according to the Doomsday Clock, with wars erupting in ever more places and wildfires scorching dearly held assumptions, it comes to this: there is no time to lose.

dreaming…
sweat rolls down
midnight

*

Haibun responding to “The Last Night of the World”, a Chamber opera by Agustí Charles inspired by Ray Bradbury’s short story of the same title. The State Theater of Augsburg commissioned it, and it premiered on 24.1.2025 at the Brechtbühne im Gaswerk. I saw it a few days later.

Creeping sepia

creeping sepia
even my iPhone stopped
recognizing me

Creeping sepia: is a relatively new kigo. Alan Summers, winner of the first modern kigo contest, writes:

“A combination of the transition into Autumn (Fall) as Summer fades, and a mixture of climate change effects bringing out an urge for a nostalgia of historically fixed and clearly defined seasonal shifts of the past. This might also include childhood/family photographs that might have been in colour but now have a creeping sepia effect.”

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