Tag Archives: Parkinsons

The Past Present (Haibun in Blithe Spirit)

Every Wednesday morning, seven of us serving the life sentence of Parkinson’s, tear through Mering Heath, in the south of Germany. Brushing against coarse grass and heather, stabbing the ground with our walking sticks, thrusting ourselves forward, we fill our lungs with the heather-scented air.

During today’s cooling-down session – swinging upper body left and right, extended arms loosely following, slowly catching our breath – the leader of our group relates the history of the place. In the 1700s, a building housing the Court of Justice stood exactly here by the Galgenbach, the Gallows stream. It was here that executions ordered by the Court were carried out. Crowds gathered, watched and cheered with the tightening of each noose, with each trap door opening. They watched the 15 minute-dance of the hanged, and then walked home.

hangman’s elm
the ancient tree creaks
and groans
.
In Blithe Spirit 35. 2 p. 70

The Clock and Rooster

What would you do if you knew this was the last night of the world? In Ray Bradbury’s short story and the recent Chamber opera inspired by it, couples, who have all dreamt the same dream about the world’s end, struggle with this question. Displaying doubt, disbelief and denial, as well as acceptance of their forthcoming demise, they argue, fight, hug, open their most expensive bottle of wine. The mundane response when facing the extraordinary. After all, the end of the world doesn’t sound as alarming as the Apocalypse!

And yet and yet. What would you do? What would I do? It is time to explore what our answer might be. Even more so than in 1951 when the short story was published, even when certain diseases propel some of us to an accelerated end. Seconds away from disaster, according to the Doomsday Clock, with wars erupting in ever more places and wildfires scorching dearly held assumptions, it comes to this: there is no time to lose.

dreaming…
sweat rolls down
midnight

*

Haibun responding to “The Last Night of the World”, a Chamber opera by Agustí Charles inspired by Ray Bradbury’s short story of the same title. The State Theater of Augsburg commissioned it, and it premiered on 24.1.2025 at the Brechtbühne im Gaswerk. I saw it a few days later.

World Parkinson’s Day

On this World Parkinson’s Day, aiming to foster awareness of the disease, let us remember that we have tools available to help improve psychological well-being and support quality of life. For me, exercising my brain and body, is vital.

Haiku poetry – by virtue of its brevity, simplicity, concentration on the moment, connectedness, and power to encapsulate experience – has proved to be a powerful tool for the challenges of PD.  https://tinyurl.com/3vt3b5yv On the physical side, table tennis is my pillar of support   http://shorturl.at/giow4

Parkinson’s Life feature

I am honored to be included in this Parkinson’s Life feature celebrating World Poetry Day!

In “Poems reflecting life with Parkinson’s Disease,” Sarah McGrath writes:

“How can poetry help to raise awareness of Parkinson’s? In light of World Poetry Day on 21 March, we look back at five interviews with writers who have picked up their pens to share their perspectives on the condition.”

Thank you, Sarah McGrath, indeed, haiku is in my PD toolbox supporting my well-being and helping me to live well with Parkinson’s.

Parkinson’s Toolbox in the online resources of Parkinson’s Europe

Delighted to see that my article “Parkinson’s Toolbox: The Case for Haiku” is now included in the online resources of Parkinson’s Europe, the umbrella organization for PD societies.

The project titled “Parkinson’s and Creativity” aims “to create an online library of scientific papers, relevant articles, and videos with the aim of sharing knowledge of the latest scientific discoveries and mysteries of Parkinson’s creativity.” Check it out here

https://www.parkinsonseurope.org/get-involved/parkinson-s-creativity/parkinsons-and-creativity/