Tag Archives: Parkinson's Toolbox

adult bibs

Delighted to appear in issue 3 of Flying Fish Haiku Journal! Many thanks to Editor Richa Sharma for including this poem:

end
of the line…
adult bib

It connects to earlier work on the same theme. In 2022, reflecting on the problems faced by persons living with PD, I wrote about the qualities of haiku that recommended it as a tool in the Parkinson’s toolbox.

Briefly, I saw haiku as a container or vessel into which one could pour “all kinds of experience—the beauty of sunsets and cherry blossoms, the exhilaration of climbing personal ‘mountains,’ but also the depth of loneliness, the pangs of pain, the embarrassment of acid reflux—and transform them, in a few words, into a manageable, livable experience”.

The three ‘adult bib’ haiku are attempting exactly that. Failing facial and throat muscles result in spilling drinks, dropping food and dribbling, becoming a daily cause of distress. The adult bib becomes an essential helpful piece of clothing, making life easy for the carers, but at the same time infantilizing the person wearing it. What does this mean? Has the person with Parkinson’s reached the end of the line?

end
of the line…
adult bib

The extent of humiliation is plain to see:

birthday present…
his adult bib embroidered
with ducks

However, the situation may be saved:

birthday meal
his Chef's Apron
sparkling white

“birthday present” and “birthday meal” both in CHO 20.2, “First-person reflections on the art of writing haibun”,

Parkinson’s Toolbox: The Case for Haiku

Juxtapositions

 The eighth issue of Juxtapositions: Research and Scholarship in Haiku is out. JuxtaEIGHT is a themed issue on “haiku and wellness,” with several articles, interviews, and resources addressing this theme. And it includes two contributions by yours truly: the article “Parkinson’s Toolbox: The Case for Haiku” is now available to download (pp 37-61), as well as a description of Haikupedia from the Resources section of Juxtapositions: Check them out here https://thehaikufoundation.org/wp-content/uploads/juxtaeight.pdf

I copy below the Abstract of the Parkinson’s article:

Parkinson’s Disease (PD)—the fastest growing neurodegenerative condition worldwide—affects a wide range of motor and nonmotor functions. At present, there is no cure. Only symptomatic treatment is available, aiming to improve quality of life and slow progression. The aim of this paper is to recommend haiku as a therapeutic tool helping with symptoms and, potentially, rate of progression. To this end, following a brief description of PD, and its symptoms grouped under two areas of loss resulting in life diminishment, I touch upon the general role of art and literature in augmenting pharmacological treatment of the disease, before focusing on some of the qualities of haiku (in the process of writing as well as the created poem) that collectively make haiku a containing vessel that can hold and transform the distress associated with the disease into a more bearable experience.